In my 50th year, I got a cancer diagnosis
Medical waste. You have no idea. If you’ve spent any time in a hospital, then again, you do.
If the way we live is making us sicker (though through advances in science, we have longer lifespans), we need to change it. We are stuck.
Cars, plastic, disposable everything. Cars, plastic, disposables. Single-use. Not biodegradable. Not safe. Medicines flowing from our bodies into the water supply and into the ground and into everything else.
Did you know you can take your own cups and bottles to take-out or fast food places? Sometimes they will refill your insulated coffee cup. Sometimes they will refill your giant, heavy-duty plastic cup. I have 2 of these and we have 3 thermal, hot beverage cups. Just peer into any garbage can outside of any strip mall in America on a Saturday or Sunday and see if you might not like to try. Have a plan. You can take your own re-usable utensils places; this is harder to remember. You might feel queer. But you might inspire others. You can put paper napkins in your compost. You can put paper bags in the recycling. You can take your own bags for fuck’s sake don’t tell me you still use the store’s plastic bags when you grocery shop. Save that for times you really couldn’t attend to this small commitment. You don’t have to be perfect, but we all have to WAKE UP. Do what you can that’s easy. Baby steps. You can do this. It matters. Oh, and don’t idle your car.
I feel less sad. I had fun yesterday. I was exhausted all day, but I had fun.
I feel a little happy this morning, I’m tired.
I’m self-absorbed. How long?
I feel the light of the universe flowing through me.
I shaved my head because Violet and a friend of hers shaved their heads and I thought FUCK IT, it’s time. I waited so long for a haircut that my hair was unruly and unflattering, but since my hair will fall out from the chemo (Cytoxan) I got yesterday, this was a great option. In about 3 weeks, my hair (what little is left) will fall out. I am not afraid or upset about this. HAIR GROWS BACK.
The problem is my face looks very raggedy to me. That part is harder. Our hair becomes attention, a focus, beauty.
Violet decided to shave off her hair separate from my situation; still it’s kind of strange, but only in my mind in a way that I wonder what other people might think. Do they think she did it for/because of me? She didn’t. Her friend goes through many hair manifestations and so does Violet. Fun. It grows back. Don’t be afraid of changing your hair!
I picture my bones white, so white. Vibrant and healthy. Calm. After all these months of picturing them in this way, not every day, but enough, it is easy to see them this way.
Calming the marrow. Stopping the proliferating rogue cells. That’s a little harder. Let’s have at it. I will have at it.
I slept well last night, but am mildly nauseous (Cytoxan does this). I’m still tired so will probably go back to sleep. It’s morning.
When I say I shaved my head, I don’t mean bald. There’s a nice, soft stubble. It’s soft to run my hand across. You’d like it. It’s a pleasant sensation.
Don’t forget to sing. I forget. My friend who drove me to Boston and stayed with me Thursday night so we could be at Dana Farber at 7 am Friday morning, reminded me to sing, to recite poems we knew from when we were young. Play is not unique to humans, but it is essential for happiness. I’ve been forgetting. That makes me sad; but I have every day of my life to choose to play.
Teenagers play in different ways than when they were little kids. Adults, too. Slowly, we forget unless we are immersed. Stay immersed in play. Do this. Remind me, too.
Love, send healing light whenever you can. Sing. Chant. Drum. Stomp. Recite. Play. Kiss your children and your friends, male and female. Kiss your family. Kiss.
I am greater than this cancer. I am bigger than this cancer. I am bigger than what it or the meds can do to me. I am strong. I am determined to be free of it for good.*
There is no room in my body for multiple myeloma (or any cancer)
There is only room for healing light and love
Can you see that? I can. Sometimes, and at least more often than before.
*but it scares me to think this. I hope I get better at it. When I can’t pull for myself, I am so incredibly grateful for your help. I know without a shred of doubt that there are hundreds of people pulling for me, some praying, some visualizing, some singing, all sending love and hope. Some helping in the most concrete ways: food, rides, goodies.
I am grateful. Thank you.
Here I am right before the buzz cut. I’m not sure I am brave enough to show you after. In time, when my face is more rested. EVERYTHING shows when you are almost bald!
Bursting with love, Katherine
love and kisses to you all!